Sleeping and hospice

We decided a couple of things today.

The first is that since I have always felt that sleeping is the best way to deal with being sick, and I’m up to 22 hours of sleep a day now, for at least the time being I will not get out of bed. If I start to perk up and get restless, I can sit up in my wheelchair for a while, and see the other people that are around. As you know, I’m a very gregarious person, only I don’t have the energy to be the social butterfly I used to be, and I don’t like loud noise very much.

The other is that we are planning to go ahead with hospice status for me. “Hospice” is kind of a confusing word. Officially it involves a judgment that there are six months of life or fewer expected, but the truth is that nobody really knows the future. It won’t entail any significant changes in my daily care, since the staff where I am know me and how to take care of me. It may mean that the hospice folks will have good ideas, and perhaps that I will have a few more visitors. My room is nice and quiet, which is wonderful, but some company and stimulation from time to time would be good, too.

I would like to share some pictures with you so you can see the latest, but Google is being a bit aggressive about what it shows in its banner image searches. Paul wants to see if he can figure out a little more about that before we go ahead.

Love to my dearest family and friends,

Beverly

8 thoughts on “Sleeping and hospice

  1. Betty Campbell

    It seems signifiant that hospice has been brought in for Beverly’s care. I was surprised to realize that she’s sleeping that much of the day – which is no doubt meaningful in hospice care. I’m surmising she will stay in the same room but just have the services of the hospice staff.

    Interesting to me is that the Chaplain who called on Harley and who later gave his service, stopped by the house yesterday. It was so nice to see him again. The hospice staff are first rate.

  2. Beverly Nordberg Post author

    Mom is a bit less lethargic now that her cold has cleared up, but she is still sleeping or in near sleep every time I see her.

    We will gradually work out a plan for what the hospice group will do. There are no specific unmet needs without them, yet they have the potential to bring a lot more attention than the routine nursing home care. The hospice service for my father was extremely helpful at that time, especially because my mother had no experience of end of life needs and care.

    It’s nice that the relationship with Harley’s chaplain was so positive and has lasted.

    Paul

  3. Betty Campbell

    It seems to me that Beverly’s life is slowly ebbing away. I think it will be that way to the end. Nothing catastrophic just a slow leaving.

    1. Beverly Nordberg Post author

      Yes. It’s like summer fading into autumn and then winter. The progress is not steady from day to day, of course.

  4. Anonymous

    Dear Paul,
    Of all people, you are the most capable of handling a situation such as Beverly’s. I t really does sound like a peaceful and relatively pain free way to end a satisfying life.
    My Dad’s last hours were like that. The nursing home called around 11 PM and thought we should come over….which we did. I stood by the head of the bed , stroking him and holding his hand.
    His breathing slowed and, just at midnight, stopped completely. His death occurred on October 17, which was Mark’s twenty-sixth birthday…..a bitter-sweet day.
    For the past couple of weeks, I’ve been battling a painful and rather severe case of shingles. So, while it has been too painful to sleep a lot, I’ve done a lot of resting. The anti-viral medication is stating to kick in and I feel as though I may just live through it! Thanks goodness for my dear Clyde and these four children who do such a good job of caring for me.
    Meals-on-wheels is supposed to call tomorrow and we are going to try them for a while, I think. Taking care of my needs, the house and yard and then trying to cook is a bit more than Clyde needs.
    He is getting frail and tires much more easily these past few months.
    We’ll see what happens. My love to a dear sister and a dear nephew.

    Janice

    1. Beverly Nordberg Post author

      Shingles is very painful, I have heard. I hope you have indeed turned the corner.

      I think that getting help for you and Clyde is a very good idea. We are all wearing out, little by little. Clyde has done and is doing a wondrous amount, but the additional service sounds very much in order.

      Mom was asleep, snoring and grimacing when I brought her lunch. She had a few bites but fell asleep in the middle of one of them, leaving it partly chewed. She did have a full supper, chewing very slowly and in very small bites. Tomorrow is another day, which I won’t predict.

      With love,
      Paul

  5. Kerry

    Paul, I am SO glad that your Mom has such an incredibly strong and caring son. We kids will be there for my Mom and Dad too, and that’s the way it should be for the people who we owe our lives to. Things will come full circle, and one day we will all be at peace.

  6. Beverly Nordberg Post author

    Yes, Kerry, the seasons revolve, and just as for a time my mother took care of me, now it is my turn to take care of her, as she is weary and seeking peace.

    Paul

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