We decided a couple of things today.
The first is that since I have always felt that sleeping is the best way to deal with being sick, and I’m up to 22 hours of sleep a day now, for at least the time being I will not get out of bed. If I start to perk up and get restless, I can sit up in my wheelchair for a while, and see the other people that are around. As you know, I’m a very gregarious person, only I don’t have the energy to be the social butterfly I used to be, and I don’t like loud noise very much.
The other is that we are planning to go ahead with hospice status for me. “Hospice” is kind of a confusing word. Officially it involves a judgment that there are six months of life or fewer expected, but the truth is that nobody really knows the future. It won’t entail any significant changes in my daily care, since the staff where I am know me and how to take care of me. It may mean that the hospice folks will have good ideas, and perhaps that I will have a few more visitors. My room is nice and quiet, which is wonderful, but some company and stimulation from time to time would be good, too.
I would like to share some pictures with you so you can see the latest, but Google is being a bit aggressive about what it shows in its banner image searches. Paul wants to see if he can figure out a little more about that before we go ahead.
Love to my dearest family and friends,